(Baby J, getting ready for his surgery follow up)
Guess what, he didn’t. The doctor came in the room, asked if we had had any further problems with bleeding and let me know that the Hematologists had informed him of the von Willebrand’s diagnosis, and then the diaper came off. He looked for a few seconds, announced that everything looked good, but there was a string that he could easily take care of, and then asked me if I had any questions. “Why is the skin red and bumpy?” “Oh, that is pretty normal after a circumcision. It may fade as time goes on.” “Why is there a string?” “Sometimes Dissolving Stitches don’t dissolve as fast as we would like. I will trim this down, it is nothing to worry about.”
I felt so much better after that 5 minute doctor visit, it was amazing. We may never need to go back to the Pediatric Urologist, well, Baby J may never need to go back. We have a 10% chance of future sons having Hypospadias. But now we know what to expect- and to test them for Von Willebrand’s prior to surgery.
Speaking of von Willebrand’s, today we are going to the Hematology/Oncology department of Primary Children’s Hospital. We will spend at least 3 hours there (I hope they have a TV, three hours could get boring). Why so long? They want to make sure the Medication which will be prescribed prior to future surgeries will actually work. The simple explanation of what the medication does is this- von Willebran’s factor is stored in the blood vessel itself, and the medication forces the blood vessel to push out as much as possible into the blood stream. So they will draw blood tests, to see his level before medication, give him the medication, and then wait 3 hours and draw blood tests again. Hopefully all will go well, if so, we will be out of the tunnel and into the light, just in time for spring.
(Baby J during piano practice this morning, piano practice comes right after- lets throw the toys around practice)
I love Spring!
3 comments:
He just gets cuter and cuter!
If you need a parent's perspective of vWD please feel free to contact me. I know a few vWD parents with vWD children.
From the post I can tell you'll be a great advocate for your son. How well did the medication work?
I am glad to know the suregery went fine and he is healing well. My son may need an op but we are waiting evaluation later this month. Your posts about hypo have been very reassuring to me. Your son is the cutest baby ever (second to my son of course, lol). Your blog is great, keep up the great entries.
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